Posts Tagged ‘cystic fibrosis’

I’m counting down for the Marine Corps Half Marathon in Jacksonville next Saturday (October 3rd). Now that I’m in the single digits, the pressure is definitely on. I’ve had a good past few weeks of training, including getting in my long runs of 7, 8, 9 and 10.5 miles on the weekends. I finally found road [...]

Great news for people with CF (and those for support CFF) came through last week, which I first saw on Twitter. September 1, 2009 The U.S. Food and Drug Administration (FDA) has approved ZENPEP™ (pancrelipase), a pancreatic enzyme replacement therapy. Pancreatic enzymes are an essential treatment of cystic fibrosis. They help people with the disease [...]

Single Greatest Night honorees got together for lunch this week (thanks Carabbas!) and we were joined by a couple of the team ambassadors, Zoe and Cammie. I should back up and tell you about how our teams are structured, and why. Each of us 40+ honorees are all divided between 4 different teams to provide [...]

I’m laying down the gauntlet to all of you. Whether you’re a friend, family, online friend, part of the CF community or just stumbled on my blog looking for pics of  a Mexican fire dance or Nissan Altima (yes I can tell how you get here)…I invite you all can be part of my Cystic [...]

It’s been awhile since I’ve updated my blog, but that’s mostly because I’ve been enjoying life in Florida and staying busy with friends, working hard and trying to keep connected with with my family and a certain sailor who’s been on deployment since January. You’ll be seeing more consistent updates to the blog for the [...]